I finally have a firm diagnosis of what went on with my right arm last summer at the time I had my decompression surgery.
The neurologist I saw in Toronto for the nerve study speculated that I might have brachial neuritis. The NL I saw locally a couple weeks ago confirmed it. At first she wasn't sure what was going on. She reviewed my MRIs, x-rays and nerve study results. Hmmm.... they all just left her with more questions. She muttered out-loud to herself and ran a off a list of possible diagnosis. Then she said something, of which I only caught "scapular winging". I said "I had scapular winging!" To which she replied, "but there's nothing here in any of the notes or reports. Well, if you had scapular winging, then you have brachial neuritis!"
EUREKA!!!!!!!!!! We have an official diagnosis!
We chatted a bit more and she looked back at the nerve study. If the NL suspected it was brachial neuritis, he didn't test the right nerves during the study! ARGHHHHHHHHHHHHH!!!!! I went through agony for NOTHING!! Well. almost nothing. There is also a superficial radial nerve issue in my right hand.
So the local NL and I discussed where to go from here. The average recovery is 2 years, meaning I have a year to go still. Okay, I can live with that. I am to continue massage, physio and acupuncture. I should not ride my motorcycle until I regain the feeling in my hand. (bbbuuutttt, I wanna RIDE!!!!)
I move forward from here. I had a return to work assessment to get back to full time this week on Tuesday. My chair arrived yesterday and my cart (which is pretty useless in everyone's eyes at the office) arrived today. The rehab manager who came Tuesday brought me the RinG pens and some monster paper clips to help me out too. Just waiting on my headset for the phone. The rehab company will be setting up a return to work schedule to increase my hours. It's going to be gradual. Very gradual. Days like today I was exhausted by 9:30. I was attempting to get my new chair comfy. Wasn't happening as I can't get the tilt right. I feel like I'm falling off the edge all the time. I tried to contact the tech at the chair company, but didn't hear back before I left. Monday, no wait, Monday is a US holiday, Tuesday, I'll have to call Texas and see what I can do. I'm not strong enough to actually tilt the chair and then lock it in place at the same time... yep, I felt completely weak and inadequate. My co-worker even tried to help! I'll get it right in another couple day or so.
Until I'm up go snuff, I'll continue where I'm at. Snuggling a puppy, working and getting on with my new "normal" life.